Lyndall Grace : At just two weeks old, Lyndall Grace was diagnosed with Cystic Fibrosis (CF) and given a life expectancy of only 32 years.
Aware that every moment was precious, Lyndall chose to live life to the fullest, focusing on “creating memories” without knowing when her health might decline.
At 27, she took on her boldest adventure yet, capturing Australia’s attention as a participant on Season 10 of Married At First Sight.
That same year, Lyndall’s life took a remarkable turn when the medication Trikafta was added to the PBS in 2022— a breakthrough that extended her life expectancy by an astonishing 40 years.
Now 30, and as May marks Cystic Fibrosis Awareness Month, Lyndall has shared her plans for the future, including freezing her eggs, while also stressing that there’s still much work to be done for those living with CF.
Cystic Fibrosis is a genetic condition that causes serious damage to the lungs, digestive system, and reproductive organs, affecting approximately one in every 2,500 newborns.
For Lyndall, gaining access to Trikafta transformed her life in countless ways.
Almost immediately, she began “breathing better” and waking up feeling more refreshed. In just two months, Lyndall’s lung function improved from 60% to 92%.
With this dramatic improvement, Lyndall felt a renewed sense of life—her laughter grew louder, and she was able to travel to places she once thought impossible. But with this newfound freedom also came new challenges.
Lyndall Grace’s Journey with Cystic Fibrosis: From a 32-Year Prognosis to a Future Full of Hope
Although Lyndall was deeply grateful for the life-changing impact of Trikafta, she admitted the news also triggered a sense of crisis.
“There was this existential dread of, ‘Oh God, I’m not ready. I haven’t done any of the work to prepare for a house, a partner, or anything like that,’” Lyndall shared.
Before Trikafta, she had deliberately avoided pursuing romantic relationships, fearing the heartbreak a partner might face by losing her at a young age.
“When I heard the news about Trikafta, the first thing I thought was, ‘Oh my God, I can get married. Oh my God, I can have kids,’” she recalled.
How Trikafta Transformed Lyndall’s Life and Inspired Her Mission for Cystic Fibrosis Awareness
More than two years after starting Trikafta, Lyndall has had time to reflect on how she wants to navigate her new future.
I know I can still live a beautiful life even if I don’t have a long-term partner or children,” she said. “But now, it’s about having the choice.
While significant progress has been made in improving the lives of people with Cystic Fibrosis (CF), Lyndall wants the public to understand that more funding and research are still urgently needed.
Trikafta is a treatment, not a cure,” she explained. “Even though the outlook has improved so much, there’s still a long way to go because not everyone with CF has access to it or responds well to the medication.
I don’t want anyone to be left behind.
This May, during CF Awareness Month, Lyndall is sharing her story in support of CF Together, an initiative dedicated to raising awareness and funds for cystic fibrosis care, advocacy, and research.
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